I love coming home.....

The cardiac catheter went ahead as planned on Tuesday and we're now back home. Hurray!

The upshot of the test showed that the pressures in Emily's right ventricle we're way too high because of the narrowed pulmonary artery. The possibility of this had been discussed previously so the consultant went ahead and did a balloon dilation of the artery to stretch the narrowing and hopefully relieve some of the pressure. He was succesful and we will have to go back on a few months to check that the artery has remained stretched. Fingers crossed. In the meantime it will mean her heart is working less hard and she'll maybe have a bit more energy. More good news is that her coronary artery tunnel has excellent flow. Emily's left coronary is made up of pulmonary tissue and passes through her pulmonary artery which makes the balloon dilation more complex, as it wouldn't be good to cause it any injury.

We had our own room on the ward which was fab as it was busy and very noisy with lots of babies and toddlers making themselves heard. Not good when mixed with a fragile and slightly anxious teenager. As usual the staff were lovely and were very careful to maintain a degree of privacy for Emily. We also had a chat about making the transition to adult services which I think we're both feeling a little happier about now.

Best be off - she wants egg on toast!