Emily continued to give us some scary moments but on the whole began to improve. She did not want to be weaned from the vent though so it was slow going. Towards the end of the fourth week post surgery she finally got extubated and into a 'headbox'. It was fabulous to see her face again without the tubes although she still had her nasogastric tube which was to become almost a permanent fixture for several months. And better still she was beginning to be weaned off some of her drugs. The morphine and sedation withdrawal made her particularly miserable; unsurprisingly as she'd been on it for quite some time. She worried me for a time as seemed unable to focus on anything but that slowly got better over the weeks.
Being able to hold her in my arms was wonderful. If you've ever heard the phrase 'my arms ached for her' then I can tell you that it is almost a physical pain.
Tuesday, 8 April 2008
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2 comments:
I would love to get in touch with another ALCAPA mom. M is really struggling with the feeding stuff, and Daddy is upset that we might end up with a GTUBE too. I'm on msn as spawnspoet001 if you are ever on and want to chat.
Jax, I am balling my face off, because Madyson, my daughter's story is the exact same!! Oh my goodness..this is unreal..you think you are the only one..and then someone like your family comes into my life...the pain we went through as mothers..is indescribable to say the least. the pain..i will never forget the pain of seeing my baby with her chest open..and basically dying..oh my god...
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