
Friday, 27 March 2009
Monday, 23 March 2009
A belated Happy Mother's Day and Coming Home Part 2
Happy Mother's Day for yesterday. Hope everyone had a lovely time and that you were well looked after by your children. Thoughts to those who no longer have their mums or their children with them.
The Coming Home Part 2 reminded me of a past Mother's Day. I've been in London over the weekend - quite a change from the norm for me as I don't get away often - on my return yesterday the house was filled with a most fabulous scent. It was the smell of the blue hyacinth sitting on my kitchen windowsill.
The smell brings back memories of a happy Mother's Day in 1994. This was the first Mothering Sunday after having Emily - she had been in hospital for many weeks and had just escaped from PICU on to the general cardiac ward. Her dad had brought down the boys to see us and they had presented me with a cut blue hyacinth for Mother's Day. I'm sure it was probably purchased from the service station on the M6 but it is the thought that counts. The flower lived for an age on the windowsill of my tiny room in the parent's accommodation block, filling the room with its scent and greeting me when I walked in of an evening. The smell reminds me of that time and they are happy memories because she was getting better and I knew by then that I would be bringing her home.
Friday, 20 March 2009
Thursday, 19 March 2009
I love coming home.....
The cardiac catheter went ahead as planned on Tuesday and we're now back home. Hurray!
The upshot of the test showed that the pressures in Emily's right ventricle we're way too high because of the narrowed pulmonary artery. The possibility of this had been discussed previously so the consultant went ahead and did a balloon dilation of the artery to stretch the narrowing and hopefully relieve some of the pressure. He was succesful and we will have to go back on a few months to check that the artery has remained stretched. Fingers crossed. In the meantime it will mean her heart is working less hard and she'll maybe have a bit more energy. More good news is that her coronary artery tunnel has excellent flow. Emily's left coronary is made up of pulmonary tissue and passes through her pulmonary artery which makes the balloon dilation more complex, as it wouldn't be good to cause it any injury.
We had our own room on the ward which was fab as it was busy and very noisy with lots of babies and toddlers making themselves heard. Not good when mixed with a fragile and slightly anxious teenager. As usual the staff were lovely and were very careful to maintain a degree of privacy for Emily. We also had a chat about making the transition to adult services which I think we're both feeling a little happier about now.
Best be off - she wants egg on toast!
The upshot of the test showed that the pressures in Emily's right ventricle we're way too high because of the narrowed pulmonary artery. The possibility of this had been discussed previously so the consultant went ahead and did a balloon dilation of the artery to stretch the narrowing and hopefully relieve some of the pressure. He was succesful and we will have to go back on a few months to check that the artery has remained stretched. Fingers crossed. In the meantime it will mean her heart is working less hard and she'll maybe have a bit more energy. More good news is that her coronary artery tunnel has excellent flow. Emily's left coronary is made up of pulmonary tissue and passes through her pulmonary artery which makes the balloon dilation more complex, as it wouldn't be good to cause it any injury.
We had our own room on the ward which was fab as it was busy and very noisy with lots of babies and toddlers making themselves heard. Not good when mixed with a fragile and slightly anxious teenager. As usual the staff were lovely and were very careful to maintain a degree of privacy for Emily. We also had a chat about making the transition to adult services which I think we're both feeling a little happier about now.
Best be off - she wants egg on toast!
Saturday, 14 March 2009
New date & the late Friday photo
Friday, 6 March 2009
Being thankful.
I came online today with the intention of having a bit of a moan. We're still waiting for Emily's new cath date - that was the crux of it. But before I logged in here I went to check on a couple of blogs belonging to friends. The bottom line is that I'm not going to winge any longer. I have nothing to winge about, infact I have everything to be thankful for. Think on.
And on that note here are this Friday's photos....
And on that note here are this Friday's photos....
These were taken at the Trentham estate this week; the first is the view from the monument and the other two the Wheel currently residing by the lakeside.
Thursday, 5 March 2009
Spring? Where?
Well I thought that Spring had arrived at the beginning of the week but last night we had more snow!
We did go for a bracing walk yesterday around the Trentham Estate (photo tomorrow). It was bright but cold and not a little muddy underfoot. The Esate is the focus of much disgruntlement locally as the owners wish to charge for the Woodland Walks, which have in the past been free to access. I'm not completely against charging but personally think £5 for an adult (£7 in the summer) is a bit steep. There are plenty of free walks slightly further afield and I think that many will take their hiking boots elsewhere.
We did go for a bracing walk yesterday around the Trentham Estate (photo tomorrow). It was bright but cold and not a little muddy underfoot. The Esate is the focus of much disgruntlement locally as the owners wish to charge for the Woodland Walks, which have in the past been free to access. I'm not completely against charging but personally think £5 for an adult (£7 in the summer) is a bit steep. There are plenty of free walks slightly further afield and I think that many will take their hiking boots elsewhere.
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